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CDSiC & Patients

Some of the most important decisions we make in life are ones that affect our health. The Clinical Decision Support Innovation Collaborative (CDSiC) aims to advance the development of evidence-based tools that align with the needs, preferences, and values of patients, caregivers, and families.

pediatric patient and clinicianHealthcare decisions can be complicated. 

When faced with questions about what kind of treatment to pursue, clinicians use decision support tools (e.g., clinical guidelines for treatment approaches) that provide them with the latest evidence and best practices. But do these tools consider things like a patient’s unique values and preferences? For example, the evidence may point to the success of aggressive chemotherapy to treat certain types of cancer, but what if the patient is concerned about how chemotherapy will affect their quality of life?

The patient’s voice is critical in creating tools that give patients the power to make informed decisions with their care teams. Patient-centered clinical decision support (PC CDS) can allow patients, their caretakers, and clinicians to make decisions together to improve patient health and healthcare experiences.

The CDSiC focuses on ensuring that the patient perspective is incorporated into all aspects of the project. The CDSiC engages with patients, patient advocates, caregivers, clinicians, researchers, and health information technology experts to ensure PC CDS products created through the CDSiC consider patients’ needs, preferences, and values.

The resources on this website can help patients understand what PC CDS is and what tools may be available to  support patients and their care teams making decisions together.

Outcomes and Objectives Workgroup: Integration of Patient-Centered Clinical Decision Support Into Shared Decision Making
This report provides a framework for the use of patient-centered clinical decision support to facilitate shared decision making.
Infographic: Patient-Centered Clinical Decision Support Explained
The Clinical Decision Support Innovation Collaborative (CDSiC) created this infographic to explain the definition of patient-centered clinical decision support (PC CDS).
Real World PC CDS: Patient-Centered CDS for Postpartum Hypertension Monitoring
Read this vignette to see an example of how patient-centered clinical decision support (PC CDS) is being used in the real world to support patient-centered care for postpartum women.
Trust and Patient-Centeredness Workgroup: An Introductory Handbook for Patient Engagement Throughout the Patient-Centered Clinical Decision Support Lifecycle
This handbook provides guidance and resources for patient engagement in patient-centered clinical decision support.
Standards and Regulatory Frameworks Workgroup: Advancing Standardized Representations for Patient Preferences to Support Patient-Centered Clinical Decision Support
This report describes standards for patient-preferences data.
Outcomes and Objectives Workgroup: Taxonomy of Patient Preferences
This taxonomy identifies and characterizes patient preferences relevant to patient-centered clinical decision support.
Infographic: Patient Preferences Are Essential to Bringing the Patient Into Focus
Patient preferences are an essential component of the patient voice, and their subsequent use in patient-centered clinical decision support can advance patient-centered care.
Trust and Patient-Centeredness Workgroup: Capturing Patient Preferences for Patient-Centered Clinical Decision Support Within Patient Lifeflows and Clinical Workflows
This report offers various methods for capturing different types of patient preference data and visualizes these within patient lifeflows and clinical workflows.
Trust and Patient-Centeredness Workgroup: Patient and Caregiver Perspectives on Generative Artificial Intelligence in Patient-Centered Clinical Decision Support
This report provides descriptions of patient and caregiver perspectives on the use of generative artificial intelligence in patient-centered clinical decision support.
Trust and Patient-Centeredness Workgroup: Improving the Source Credibility of Patient-Centered Clinical Decision Support Tools
This report provides a framework for understanding the role of source credibility in patient-centered clinical decision support tools.
Trust and Patient-Centeredness Workgroup: Methods for Involving End Users in PC CDS Codesign
This resource paves the way for end users' involvement in codesign of patient-centered clinical decision support.
Chartbook: Involving End-Users in Co-Design of Patient-Centered Clinical Decision Support
This chartbook provides an overview of key takeaways from the Trust and Patient-Centeredness Workgroup: Methods for Involving End-Users in the PC CDS Co-Design report.
Scaling, Measurement, and Dissemination of CDS Workgroup: Approaches to Measuring Patient-Centered CDS Workflow and Lifeflow Impact Executive Summary

This executive summary synthesizes the findings discussed in the report, "Scaling, Measurement, and Dissemination of CDS Workgroup: Approaches to Measuring Patient-Centered CDS Workflow and Lifeflow Impact."