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Stakeholder Community and Outreach Center

The Stakeholder Community and Outreach Center (Stakeholder Center) is a forum for a diverse range of clinical decision support (CDS) stakeholders to come together to help shape the current and future landscape of CDS. Through its Workgroups, the Stakeholder Center provides thought leadership for the Clinical Decision Support Innovation Collaborative (CDSiC) activities, develops products that will help advance CDS, and offers input on CDSiC Innovation Center projects.

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 The design, implementation, and measurement of CDS involves a range of stakeholders, with each playing an important role in ensuring that CDS provides patients, caregivers, and care teams the information they need to make healthcare decisions. The CDSiC Stakeholder Center brings this expertise together in four Workgroups to identify and address critical needs in each step of the CDS development process.

Each of the CDSiC Workgroups is focused on a specific topic area that is critical to the advancement of patient-centered CDS (PC CDS). These Workgroups are developing written products in the form of reports, resources, and tools that will address gaps in the current CDS landscape. Thus far, Workgroups have produced 12 products, with an additional 11 products anticipated by Fall 2024. These products will inform the activities of the CDSiC Innovation Center and support the external community in advancing the development, implementation, and measurement of PC CDS to reach short- and long-term CDS goals. In addition to product development, the Workgroups provide thought leadership and input for other components of the collaborative, ensuring that the activities of the CDSiC are informed by a range of stakeholder perspectives.

Learn more about the CDSiC Workgroups:

 

Workgroup Products

In its third year, the Stakeholder Community & Outreach Center Workgroups are building off the momentum of the first two years by developing a new set of 11 products that address important research gaps in PC CDS. Read more about the upcoming products here.

Products produced by the four Workgroups to date are linked below:

Measurement and Outcomes Workgroup: Patient-Centered Clinical Decision Support Planning and Reporting Tool User Guide
This user guide provides information about how to complete the Patient-Centered Clinical Decision Support Planning and Reporting Tool.
Measurement and Outcomes Workgroup: Patient-Centered Clinical Decision Support Planning and Reporting Tool 
This tool supports research teams and others in describing how they addressed four key patient-centered clinical decision support lifecycle phases and associated patient-centered factors when implementing a patient-centered clinical decision support tool.
Measurement and Outcomes Workgroup: Patient Prioritization of Measurement Areas for Patient-Centered Clinical Decision Support
This report aims to identify what measurement areas within the patient health journey are important to patients when determining if patient-centered clinical decision support (PC CDS) is achieving its intended purpose.
Measurement and Outcomes Workgroup: Inventory of Patient Preference Measurement Tools for PC CDS Report
This report describes an inventory of tools to collect patient preference information.
Measurement and Outcomes Workgroup: Patient Preference Measurement Tools for PC CDS Inventory Spreadsheet
This inventory spreadsheet identifies available patient preference measurement tools from the literature to support the incorporation of patient preferences into PC CDS tools.
Outcomes and Objectives Workgroup: Integration of Patient-Centered Clinical Decision Support Into Shared Decision Making
This report provides a framework for the use of patient-centered clinical decision support to facilitate shared decision making.
Outcomes and Objectives Workgroup: Patient-Focused Outcome Measures for Patient-Centered Clinical Decision Support
This report offers measures to evaluate patient-centered clinical decision support impact on patient-focused outcomes.
Outcomes and Objectives Workgroup: Taxonomy of Patient Preferences
This taxonomy identifies and characterizes patient preferences relevant to patient-centered clinical decision support.
Implementation, Adoption, and Scaling Workgroup: Key Factors and Considerations for Assessing the Value of Patient-Centered Clinical Decision Support
This report examines key factors and considerations for assessing the value of patient-centered clinical decision support (PC CDS).
Implementation, Adoption, and Scaling Workgroup: Exploring Challenges and Opportunities for Patient Engagement, Implementation, Adoption, and Scaling Through PC CDS Case Studies
This report offers insights and recommendations for implementing and scaling patient-centered clinical decision support.
Implementation, Adoption, and Scaling Workgroup: Landscape Assessment on the Use of Artificial Intelligence to Scale PC CDS
This report assesses use of artificial intelligence to scale patient-centered clinical decision support.
Scaling, Measurement, and Dissemination of CDS Workgroup: Approaches to Measuring Patient-Centered CDS Workflow and Lifeflow Impact
This report examines how patient-centered CDS interventions impact care team workflows and patient lifeflows.
Scaling, Measurement, and Dissemination of CDS Workgroup: PC CDS Performance Measurement Inventory User Guide
This user guide identifies available measures to assess patient-centered clinical decision support (PC CDS).
Scaling, Measurement, and Dissemination of CDS Workgroup: PC CDS Planning, Implementation, and Reporting User Guide
This user guide provides details on capturing patient-centered clinical decision support implementation features.
Standards and Regulatory Frameworks Workgroup: Prioritizing Patient Preferences for Standardization to Support PC CDS
This report explores the standardization of patient preference information for inclusion in patient-centered clinical decision support.
CDS Standards and Regulatory Frameworks Workgroup: An Initial Taxonomy of Override Reasons for Patient-Centered Clinical Decision Support (PC CDS) Recommendations
This taxonomy provides a shared set of override domains that can be used by developers and researchers when analyzing why users do not accept patient-centered clinical decision support guidance.
An Overview of Standards for Patient-Centered Clinical Decision Support
This factsheet describes available standards and future opportunities for the patient-centered clinical decision support technical landscape.
Standards and Regulatory Frameworks Workgroup: Improving Interoperability of Patient Apps with the Health IT Ecosystem
This report identifies opportunities for improving patient app interoperability to advance patient-centered clinical decision support.
Standards and Regulatory Frameworks Workgroup: Advancing Standardized Representations for Patient Preferences to Support Patient-Centered Clinical Decision Support
This report describes standards for patient-preferences data.
Standards and Regulatory Frameworks Workgroup: Environmental Scan
This environmental scan reveals opportunities to evolve standards and regulatory frameworks to advance patient-centered clinical decision support.
Trust and Patient-Centeredness Workgroup: Action Plan to Collect and Use Social Determinants of Health Data in Patient-Centered Clinical Decision Support
This action plan describes critical needs for ensuring the incorporation of social determinants of health factors across the patient-centered clinical decision support lifecycle.
Trust and Patient-Centeredness Workgroup: Capturing Patient Preferences for Patient-Centered Clinical Decision Support Within Patient Lifeflows and Clinical Workflows
This report offers various methods for capturing different types of patient preference data and visualizes these within patient lifeflows and clinical workflows.
Trust and Patient-Centeredness Workgroup: Patient and Caregiver Perspectives on Generative Artificial Intelligence in Patient-Centered Clinical Decision Support
This report provides descriptions of patient and caregiver perspectives on the use of generative artificial intelligence in patient-centered clinical decision support.
Trust and Patient-Centeredness Workgroup: An Introductory Handbook for Patient Engagement Throughout the Patient-Centered Clinical Decision Support Lifecycle
This handbook provides guidance and resources for patient engagement in patient-centered clinical decision support.
Trust and Patient-Centeredness Workgroup: Improving the Source Credibility of Patient-Centered Clinical Decision Support Tools
This report provides a framework for understanding the role of source credibility in patient-centered clinical decision support tools.
Trust and Patient-Centeredness Workgroup: Methods for Involving End Users in PC CDS Codesign
This resource paves the way for end users' involvement in codesign of patient-centered clinical decision support.

Stakeholder Center Quarterly Progress Reports

Each quarter, the CDSiC Stakeholder Center publishes reports documenting developments and updates regarding the status of products under development by the four Workgroups. 

CDSiC Stakeholder Center Quarterly Report, January to March 2025

This quarterly report provides a summary of the status of all projects and activities being conducted within the CDSiC Stakeholder Center from January 2025 through March 2025. Over this period, the Stakeholder Center has focused on advancing the development of 11 distinct written products.

CDSiC Stakeholder Center Quarterly Report, October to December 2024
This quarterly report provides a summary of the status of all projects and activities being conducted within the CDSiC Stakeholder Center from October 2024 through December 2024. Over this period, the Stakeholder Center has focused on developing and refining ideas for 11 distinct written products.
CDSiC Stakeholder Center Quarterly Report, July to September 2024
This quarterly report provides a summary of the status of all projects and activities being conducted within the CDSiC Stakeholder Center from July 2024 through September 2024. Over this period, the Stakeholder Center has focused on the development of eleven products for the third year of the CDSiC.
CDSiC Stakeholder Center Quarterly Report, April to June 2024
This quarterly report provides a summary of the status of all projects and activities being conducted within the CDSiC Stakeholder Center from April 2024 through June 2024. Over this period, the Stakeholder Center has focused on the development of eleven products for the third year of the CDSiC.
CDSiC Stakeholder Center Quarterly Report, January to March 2024
This quarterly report provides a summary of the status of all projects and activities being conducted within the CDSiC Stakeholder Center from January 2024 through March 2024. Over this period, the Stakeholder Center has focused on development eleven products for the third year of the CDSiC.
CDSiC Stakeholder Center Quarterly Report, October to December 2023
This status report provides a summary of all projects and activities being conducted within the Stakeholder Center from October to December 2023. Over this period, Workgroups focused on advancing 11 distinct written products.
CDSiC Stakeholder Center Quarterly Report, July to September 2023
This status report provides a summary of all projects and activities being conducted within the Stakeholder Center from July through September 2023. Over this period, Workgroups focused on advancing 11 distinct written products.
CDSiC Stakeholder Center Quarterly Report, April to June 2023
This status report provides updates on the progress of Stakeholder Center activities from April through June 2023. Over this period, Workgroups have focused on advancing 11 distinct written products.
CDSiC Stakeholder Center Quarterly Report, January to March 2023
This status report provides updates on the progress of the activities of the Stakeholder Center from January through March 2023. Over this period, Workgroups have focused on advancing 12 distinct written products.
CDSiC Stakeholder Center Quarterly Report, October to December 2022
This status report provides updates on the progress of the activities of the Stakeholder Center from October through December 2022. Over this period, Workgroups have focused on conducting literature reviews and key informant interviews (KIIs).

Related Resources

CDSiC Stakeholder Community and Outreach Center Charter - Option Year 2
The CDSiC Stakeholder Community and Outreach Center Option Year 2 Charter is a document that describes the purpose, goals, and key activities of the Stakeholder Center.
CDSiC Stakeholder Community and Outreach Center Charter - Option Year 1
The CDSiC Stakeholder Community and Outreach Center Option Year 1 Charter is a document that describes the purpose, goals, and key activities of the Stakeholder Center.
CDSiC Stakeholder and Community Outreach Center Charter - Base Period
The CDSiC Stakeholder Community and Outreach Center Base Period Charter is a document that describes the purpose, goals, and key activities of the Stakeholder Center.
CDSiC Stakeholder Community and Outreach Center Operational Framework - Option Year 2
The CDSiC Stakeholder Community and Outreach Center Option Year 2 Operational Framework is a document that provides direction for the Stakeholder Center.
CDSiC Stakeholder Community and Outreach Center Operational Framework - Option Year 1
The CDSiC Stakeholder Community and Outreach Center Option Year 1 Operational Framework is a document that provides direction for the Stakeholder Center.
CDSiC Stakeholder and Community Outreach Center Operational Framework - Base Period
The CDSiC Stakeholder Community and Outreach Center Base Period Operational Framework is a document that provides direction for the Stakeholder Center.